The Public Consultation on the Strategic Research & Innovation Agenda of the future European Rare Diseases Partnership is now open. You can share your voice here by the 09/06/2023.

Under Horizon Europe, the European Commission together with Member States and Associated Countries decided to implement the Rare Diseases Partnership which brings a unique vision that aims at leaving no one behind by supporting robust patient need-led research, by utilising and maximizing the power of health and research data, by engaging and coordinating regional, national, EU and international alignment in order to accelerate the development of new treatments and diagnostic pathways.

To build its strategy on the voice and input of all stakeholders and as part of the preparatory process of this future Rare Diseases Partnership (foreseen start in 2024) the Strategic Research and Innovation Agenda of the RD Partnership is now open for public consultation.

We hope to gather the inputs of all types of stakeholders to make sure that the actions of the partnership will fit the needs and expectations of rare diseases community.

Both organisations and individuals can participate in this hearing.